Endometriosis is a painful disease which can go years without being diagnosed. The Traitors star Elen Wyn is one of many battling the disease after a long ten-year wait.

While it is difficult to diagnose endometriosis, there are some symptoms you should look for to ensure you are seeking the right help. That’s according to Dr Donald Grant, GP and senior clinical advisor at The Independent Pharmacy, who has explained the signs you shouldn’t ignore.

What is endometriosis?

Dr Grant said: “Endometriosis is caused when cells similar to those in the womb (the uterus) grow in other parts of the body. This can cause pelvic pain, heavy periods and in some cases infertility.”

What are the key symptoms of endometriosis?

The symptoms of endometriosis happen when patches of tissue break down during your period but have no way to leave the body. This can cause a range of issues and some key signs to watch out for include:

Heavy periods

Dr Grant said: “Endometriosis can cause abnormally heavy periods. If you’re soaking through a pad or tampon within an hour or two, or experiencing frequent leaks onto your clothes or bedding, this could be a sign of the condition. Excessive blood loss can lead to fatigue and iron deficiency, so tracking your cycle and consulting a doctor is recommended.”

Severe period pain

Dr Grant said: “One of the most common symptoms of endometriosis is intense period pain. While discomfort during menstruation is normal, pain that is so severe it prevents you from carrying out daily activities, such as work or socialising should not be ignored. If you find yourself relying heavily on pain relief or struggling to function during your period, it’s important to seek medical advice.”

Pain in the back or lower abdomen

Dr Grant said: “Ongoing pain in the lower tummy or back, especially if it worsens around your period, can be a sign of endometriosis. This pain is often mistaken for general menstrual cramps, but if it’s persistent or worsening over time, it could indicate something more serious.”

Endometriosis often goes undiagnosed for years (Alamy/PA)
Endometriosis often goes undiagnosed for years (Image: Alamy/PA)

Pain during or after sex

Dr Grant said: “Many people with endometriosis report pain during or after sex, which can be caused by endometrial tissue growing in areas that are affected by movement or pressure. This pain can range from mild discomfort to severe and lingering soreness. If this is impacting your quality of life, it’s important to speak to a healthcare provider about potential treatment options.”

Pain when going to the toilet

Dr Grant said: “Pain when urinating or having a bowel movement is another telltale symptom of endometriosis. This can happen particularly during your period, as endometrial tissue outside the uterus can cause inflammation and irritation in surrounding organs. If you experience persistent discomfort when using the toilet, it’s worth discussing with a medical professional.”

Fatigue

Dr Grant said: “Chronic fatigue is a lesser-known but significant symptom of endometriosis. The body’s inflammatory response, combined with disrupted sleep due to pain, can leave people feeling constantly drained. If you’re experiencing extreme tiredness even when getting enough rest, this could be linked to endometriosis.”

Bleeding from other parts of the body

Dr Grant said: “In rare cases, endometriosis can cause bleeding from unusual areas, such as the lungs or digestive tract, leading to coughing up blood or blood in the stool. While uncommon, this symptom should never be ignored, and urgent medical attention is advised if it occurs.”